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Home - EURORDIS
EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.
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Research - EURORDIS
Why is research a priority for people living with a rare disease? Research leads to a better understanding of rare diseases, quicker and more accurate diagnosis, innovative treatments and cures, and b...
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Home - EURORDIS
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Earlier, faster and more accurate diagnosis - EURORDIS
Rare diseases affect millions of people around the world, yet many remain undiagnosed or misdiagnosed for years. A timely and accurate diagnosis is essential for people living with a rare disease, as ...
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Find information on your rare disease - EURORDIS
Find information on your rare disease
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Orphanet is a directory of rare diseases, orphan medicines, patient organisations, professionals, expert centres, diagnostic tests, research proje...
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Who we are - EURORDIS
A unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries EURORDIS – Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organ...