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Home - EURORDIS
EURORDIS - Rare Diseases Europe. We advocate for, empower and engage people living with a rare disease in Europe.
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EURORDIS 2024: Strategic Pathways and Collaborative Endeavours - EURORDIS
By Yann Le Cam, Chief Executive, EURORDIS-Rare Diseases Europe As 2024 unfolds, EURORDIS stands at a critical juncture of transformative change. This year, against the backdrop of the EU elections, is...
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Resources - EURORDIS
Resources Keyword search European Disability Forum European Health Technology Assessment EURORDIS Awards Governance Newborn screening Annual Reports & Work Programmes Factsheets and infographics News ...
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Find Information on Medicines - EURORDIS
Find the answers to your questions about treatments for rare diseases.
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Members - EURORDIS
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 1000 rare disease patient organisations in 74 countries. EURORDIS works to build a strong pan-European comm...
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European Reference Networks - EURORDIS
What are the European Reference Networks and why are they a priority for people living with a rare disease? Finding the right expert for a rare disease and accessing care remains a challenge for many ...